Alzheimer’s disease is the most common form of dementia, accounting for 60-80 percent of dementia cases. Right now, it’s estimated more than five million Americans are living with the disease. Alzheimer’s is a slow, fatal disease of the brain which typically begins by destroying brain cells where memories are formed. The disease is caused by plaques and tangles, abnormal protein fragments that accumulate in the brain, though we don’t exactly understand why.
Alzheimer’s disease is a form of dementia which affects memory, thinking and behavior. Symptoms of Alzheimer’s develop slowly, but progressively worsen over time. There is no cure for Alzheimer’s, but treatment for symptoms is available to improve a person’s quality of life. Alzheimer’s disease is diagnosed through a complete medical assessment including a thorough medical history, mental status testing and physical and neurological exams, and other tests to rule out other causes of dementia-like symptoms.
For caregivers, understanding common behavior changes of someone living with Alzheimer’s is important. A person with Alzheimer’s may need help with planning their day and remembering appointments, or even simple tasks like dressing and bathing. As the disease progresses, a person with Alzheimer’s may become frustrated, anxious or embarrassed by their cognitive decline. A caregiver may need to provide emotional and physical support, as well as encouragement. Individuals with Alzheimer’s may become restless, experience rapid mood swings, or wander. Knowing how to balance a person’s safety and independence becomes more difficult as the disease progresses.
The following stages help provide a general idea of how the disease will affect certain abilities. The seven-stage framework is based on a system developed by Barry Reisberg, M.D., clinical director of the NYU School of Medicine’s Silberstein Aging and Dementia Research Center.
Patient and family advisors are individuals who have experienced care at ProMedica, either as a patient or a family member, and are willing to provide input from a patient's perspective to improve care.
Patient and family advisors volunteer their time to share their perspectives with ProMedica employees and leadership. We ask PFAC members for their input on initiatives occurring at the location that they support and across the ProMedica continuum of care.
Patient and family advisors can commit to as little as one two-hour meeting each month or as often as weekly patient rounding.
If you are interested in joining our team, please complete this form. We will connect you with the PFAC leader near you who will reach out and set up a time to meet with you.
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See the checklist below:
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Meeting the demands of a loved one with Alzheimer’s disease can be difficult and seem impossible. At Arden Courts, memory care is all we do. We offer the following services dedicated to those living with memory impairments, their family members, caregivers and health care professionals.
All her adult life, Violet loved spending time in her garden. She looked forward to retirement and the chance to take a Master Gardening course. She was just 55 when her doctor diagnosed her with EOAD. Her husband still worked full-time and he worried about her safety when he wasn’t at home. Violet’s family also longed to keep her connected to people and her flowers. When she first moved to Arden Courts, Violet rarely came out of her room and insisted, “I don’t belong with those people.”
The staff at Arden Courts patiently built a relationship with Violet while nurturing her love of plants. They filled her room with houseplants and gave her a gardening plot on the grounds which she maintained with the staff’s help. Many days, staff members provided her with bundles of fresh flowers for her to arrange.
Violet eventually grew comfortable interacting with “those people” in small groups. She found friends who shared her interest in gardening. She could no longer write, but she liked to listen, especially to talks related to gardening topics. Her small group gave her a chance to express her opinions and share her gardening experiences in a safe and friendly environment.
As Violet’s disease progressed, she visited large group programming more often as a break from wandering. The music and laughter enticed her and she would stay for 45 minutes or more. Her circle of friends became wider and she enjoyed the safety and comfort of others.
Violet eventually became unstable while walking and less able to interact with others. She transitioned to Namaste Care where programming is designed to be slower and sensory based. She enjoys looking out the window at the breeze blowing the branches while listening to soothing music. In addition, she finds pleasure in smelling fresh flowers and looking through a specially-made scrapbook of all her favorite flowers.
The ProMedica Memory Care Fund assists those who are coping with memory loss and supports center services and caregiver education for the enrichment of all.